Do you find when you tell someone that you have ME/CFS that they often respond that they are often tired themselves? I always feel like I have to make sure anyone who says this knows that I’m not just talking about the normal “tired” or the normal “fatigued” that people experience from mental or physical work. This kind of tired that these people are talking about can be relieved by going to bed and getting a good night’s rest. The kind of “fatigue” associated with most people comes from lack of sleep, being overworked, or having some type of cold, flu or other mild illness.
People who suffer from “chronic fatigue” feel differently than those of us who suffer from “chronic fatigue syndrome”. There is a big difference. Because doctors often hear fatigue as a main symptom from patients, when someone who truly has ME/CFS presents their symptoms, they are often misdiagnosed.
I read an interesting article on About.com that talks about the differences between having “chronic fatigue” and “chronic fatigue syndrome”. If a person has “chronic fatigue”, they have exhaustion or a lack of energy that lasts for six months or longer. When someone has chronic fatigue, it is usually a symptom of something else, such as:
- Sleep disorders/lack of sleep/insomnia
- High stress
- Nutrient deficiencies
- Infection
- Immune/autoimmune disorders and diseases
- Depression
- Organ disease
- Muscle/nerve diseases
- Hypothyroidism
For someone to have “chronic fatigue syndrome”, their symptoms must have lasted at least or six or more months and they must meet the other criteria set for ME/CFS:
Clinically evaluated, unexplained, persistent, or relapsing fatigue that is:
- Of new or definite onset
- Not a result of ongoing exertion
- Not alleviated by rest
- Results in a substantial reduction in previous levels of occupational, social, or personal activity
Four or more of the following symptoms that persist or recur during 6 or more consecutive months of illness & that do not predate the fatigue:
- Self-reported impairment of short-term memory or concentration
- Sore throat
- Tender lymph nodes
- Muscle pain
- Multi-joint pain without swelling or redness
- Headaches of a new type, pattern, or severity
- Unrefreshing and/or interrupted sleep
- Post-exertion malaise (this is a feeling of general discomfort or uneasiness) lasting more than 24 hours.
Exclusion Criteria:
- Active, unresolved or suspected disease that is likely to cause fatigue
- Psychotic, melancholic, or bipolar depression (but not uncomplicated major depression)
- Psychotic disorders
- Dementia
- Anorexia or bulimia nervosa
- Alcohol or other substance misuse
- Severe obesity
meredith says
OMG – that is exactly the response I get from everyone, even my current MD! so aggravating and discouraging…
sharon levin says
actually ME IS CALLED CFIDS (CHRONIC FATIGUE IMMUNE DEFICIENCY SYNDROME) TO DIFFERENTIATE ENTIRELY FROM CFS WHICH SI THE DISORDER YOU ARE DESCRIBING AS CF (TIRED ALL THE TIME SYNDROME/TTTS). THAT MAY BE EASIER WHEN DESCRIBING TO MEDICAL OR LAY PEOPLE – MEANING THAT THE IMMUNE SYSTEM EXTREMELY LOWERED (50% OF THE TOTAL WORRL POPULATION THAT HAS BEEN DIAGNOSED WITH FIBROMYALGIA HAVE HAD INSTANCES IN THEIR LIVES OF EBV/CMV/COCKSAKIE AND HERBES SIMPLEX Ab’S TOO) – MOST UNDIAGNOSED CONDITIONS OR MISDIAGNOSED CONDITIONS IN THE WORLD TO DAYE – AS THEY FALL UNDER THE BANNER OF ‘FUNCTIONAL MEDICAINE’ AND NOT ‘ORGANIC, SCIENTIFIC MEDICINE’. AS THE HEAD OF FM/CFIDS/CFS/ADRENAL FATIGUE SUPPPORT NETWORK AND IN PRIVATE PRACTICE HAVING BEEN THE SUFFERER NOW THE VICTOR IN REMISSION OF ALL THE ABOVE FOR 14 YEARS, WITH 1 ATTACK OF EBV ONLY I BETWEEN, I HAVE MADE THESE ILLNESSES MY ‘FRIENDS’ AND WORK WITH THEM, NEVER AGAINST WHAT THE BRAIN HAS DYSFUNCTIONED AND WIN DAILY. MY PATIENTS ARE THOSE WHO LOOK FOR THE HOLISTIC ROUTE BACK TO WELLNESS AND WIN TOO. THOSE WHO FIND THIS PATH ‘TOO HARD’ COME BACK AFTER FINDING NO REAL HELP IN THE ALLOPATHIC WORLD NOR IN THE MEDICATION THAT SCIENTIFIC MEDICINE DICTATES. BEST WISHES. SHARON LEVIN. (THIS NEW WEB SITE WILL BE RUNNING FROM END AUG 2008). I CAN BE CONTACTED ON fmssha@ibi.co.za