A recent article in the Myrtle Beach Online news talks aboutone woman’s journey with ME/CFS and the article gives some basics that most of us already know about ME/CFS. It was be nice to read a news article that shared some different information for the public. It always seems to be the same regurgitated stuff but the writer of the articledid interview Kimberly McCleary, the President of the CFIDS Association.
One thing she said in the article that really stood out to me when describing ME/CFS was:
“This isn’t a death sentence but it’s a life sentence.”
She also said that labeling the disease as “fatigue” has been unfortunate:
“That makes it sound like it’s a lifestyle issue when it’s really much more serious and complicated than that. People don’t understand what you’re going through, because you look perfectly fine. They happen to see you in the grocery store and they don’t realize the trip is going to put you back in bed for two or three days. This isn’t a visible illness.”
The article featured can be found at the link below:
I don’t have CFS, but I can totally relate to the grocery store quote because of my fibromyalgia. I want to read the entire article, just based on your two quotes. Great job pulling me in!
Jen@
http://www.happyfibrofamily.today.com