The National Vulvodynia Association has released information stating that the Oprah Winfrey Show is looking for Vulvodynia patients to be on the show.
The show is looking for single women who are in their 20s and 30s who fear that they will never marry or have children due to Vulvodynia. They are also looking for Caucasian women of any age with Vulvodynia to be on the show.
If you fit either one of these criteria, please send an email ASAP to Christin Veasley, Associate Executive Director of the National Vulvodynia Association. Her email address is chris@nva.org. She will need you to provide the following information:
- Name
- Age
- Ethnicity
- Contact information – phone number & email address
- Current photo (Attachment)
- Summary of your history with vulvodynia, i.e., When were you diagnosed? How many doctors did you visit before receiving a correct diagnosis? Have any treatments helped you? Is your vulvodynia better, worse or the same?
- How has vulvodynia affected your ability to pursue a career and/or engage in social activities? How has vulvodynia affected your sex life, marriage or relationships?
- Statement that you give NVA permission to forward your contact information to producers at The Oprah Winfrey Show.
Your summary should be limited to 1 – 2 paragraphs.
Abigail says
Sandy,
When did you find out about the Oprah vulvodynia request? I was just wondering because I noticed that link under upcoming shows a few weeks ago. Now it has disappeared. I am so curious, because I’m wondering if they taped it already or if it’s still in the works. I do so hope they do a show! I’m hoping it will open some doors for women. I suffered from vulvodynia and IC myself for several years and have had a successful recovery from both (see my blog if you want to at: http://vulvodyniacoach.wordpress.com/.
Thanks,
Abigail
Sandy Robinson says
Hi Abigail! If you would like, I will add your blog to my blogroll and maybe you can add me to yours? I did add you to my Resources page on here, but not my regular blogroll. I think I found it on the IC Network forum.
Abigail says
Sandy,
Thanks for adding my blog! I have added yours as well. I appreciate the link. I am on a mission to spread positive messages about healing and hopefully give women with IC and vulvodynia some support and hope.
Abigail
Brandi says
I love your blog, very informative. I am new to blogging, and will be coming to you often for examples of how to blog properly:~)
laura says
Hi Thanks for you site. I too have a blog. I have healed from Vulvadynia (vulvodynia) naturally as well. I have posted what I did on my blog. I don’t sell anything. Just trying to help other women. I was so frustrated because doctors failed me. I had to take matters into my own hands. If you would post my blog I will put yours on my blog links. Let me know. Laura
Sandy Robinson says
Hi Laura, I added your link to my blogroll. 🙂
Vulvodynia says
Good the information about this condition gets wider and wider publicy. I hope there will be more of such events, so vulvodynia is better identified. I would be also easier for us in foreign contries were this condition is lesser known.
Thanks for the news.
Deborah Smith says
I am currently battling Vulvodynia. I am taking Gabba Pentin and thought it was working for a while but now the pain is back. It is scary to think that I will never be well again. I’m trying a new GYN soon but I’m not feeling very confident about it. I’m 70 years old and use to be active but that has changed. I need help.