I knew I was feeling too well there for a while. I get my hopes up, feel well for a while and think that maybe just this once, I am finally getting my life and my health under control. Then I get this bad sinus infection and I remember – oh, that’s right! I have chronic sinusitis, which is common in people who have chronic fatigue syndrome.
I have been feeling sick on and off for a while but last week, last Saturday in particular, I started feeling extremely bad to the point where I had to call off of work. On Monday I went to the doctor and she confirmed my suspicions – I have yet another sinus infection. My ears, in her words, are “full of mucus and so cloudy she could barely see my ear drums”. My throat had, what she referred to, as the “hallmark cobblestone bumps of sinus drainage and infection”.
My head feels like it is going to explode, and even after 5 days on antibiotics, I still feel like I haven’t improved any at all. My ears are still full and I have that gushy, woozy feeling when I am upright. I assume it is from all of the mucus and pressure in my head. I always feel like I have to blow my nose, but when I do, very little will come out. It is as if all of this infection and mucus and junk is just stuck in there, refusing to budge. I need to get it out so that I can get better.
To top it all off, the doctor also believes I may have a bladder infection. I explained to her that I have been having some bladder issues but because I also have Interstitial Cystitis, it is hard to tell sometimes whether it is an infection or just a flare. I had two episodes of incontinence right around the time my sinus problems started and that has never happened before. Not in the way it did this time. Normally, if I have a “pee accident” (this is what my son calls it!), it is because I sneezed, coughed, or was trying to do something physical that was too strenuous for my bladder. But these two incidences were nothing like that. Both times I was just standing and wasn’t doing anything else. The urge came upon me suddenly and I couldn’t make it to the bathroom.
So when I was at the doctor’s office, she took a urine sample because I also explained that I was going to the bathroom more, I have been having the pain in my bladder and kidneys. But again -these are all hallmark symptoms of IC Disease as well.
My urine sample showed high levels of Leukocytes (white blood cells) which is a marker of infection but again – in IC patients, it is common for us to show these, especially during a flare. The doctor said she would send off my culture to have it further analyzed so that they could determine exactly what was going on so that we would know for sure – infection or IC flare.
Just to be on the safe side, she put me on an antibiotic to cover both a bladder & sinus infection but neither one has improved any. So I’m thinking a few things:
- I’m possibly immune to the antibiotic (Cefdinir)
- The infection(s) are causing the CFS to flare and that’s why I’m not feeling any better
- or because I have CFS my body is not responding and it is going to take me FOREVER to get over this.
I went into work yesterday and only made it two hours before my boss asked me if I wanted to go home. She said I looked pretty bad and I was hearing that from a lot of people. Obviously, I don’t hide it well when I don’t feel good even though I try to.
To top things off, I’m not sleeping. I am super exhausted, but sleep won’t come, which tells me that a CFS flare is still going on, too. This is what is so difficult about having so many health problems. You can’t tell what is what and it’s hard to get better. I just want to feel better.
I’ve been running a low-grade fever and even after 5 days on the antibiotics, my fever is still hovering around 99.6. I am scheduled to work tomorrow so I hope to God I improve. I can’t afford to lose my job, especially now that my husband doesn’t have one.