I am experiencing yet another flare and I’m afraid that this one isn’t going to go away anytime soon. I have had CFS long enough to know that this flare is a pretty bad one and it will take me a while to come back from it. Two weeks ago I was experiencing a pretty bad flare where I wasn’t able to do anything but lie on the couch and in bed for three days. Last week I was feeling really good and yes – I did overdo it a little bit. I was feeling so good I couldn’t help myself. Saturday I started feeling bad again and I wasn’t on my computer for two days. My husband says he knows I’m feeling bad when I don’t get on the computer for a couple of days. He’s in shock when I only miss one day!
I spent most of Easter Sunday trying to sleep. I haven’t been sleeping well since Friday, only a few hours a night, and that is making the flare worse. On Sunday after church I came home and rested until it was time to go out to eat for lunch. My parents took the family out to a local restaurant instead of all of us doing the cooking. I didn’t sleep after church, however, and by the time we went for lunch at 2:00 p.m. I was miserable. Everyone could tell just by looking at me that I was not doing well.
Then yesterday I had to go to work and on the way I prayed that it wouldn’t be busy, but no such luck. I guess no one had any leftovers from Easter dinner because we were super busy, I was super miserable and I didn’t even care that I wasn’t as friendly or talkative as I usually try to be with my customers. When I feel this bad I just don’t give a crap. I wasn’t rude to anyone, I just wasn’t smiling much or as chatty as I normally try to be.
It’s days like that where someone with CFS and FM should not be allowed to work with the public! We should have a “caution” or “beware” sign to wear. I can be really grouchy when I am having a flare and all I could think about was going home. I kept watching the clock wanting my shift to end so badly. The last half hour of my four-hour shift I had to work on the self-scan registers and I felt like I was going to pass out. I had to sit down for a few minutes to get myself under control.
I couldn’t wait until it was time to go home so I could lie down and try to sleep. How pathetic does that sound? I actually look forward to going home and sleeping after work. That’s how the mind of a PWC works! Even as I write this all I want to do is sleep. These flares don’t get any easier the older I get.
I’m off today, work tomorrow and then I don’t have to go back in until Saturday. I am taking it easy this week regardless of what needs done around the house. I don’t want to end up laid up for months as I have in the past.
Sherlock says
I am so sorry to hear you’re feeling so bad. I hope the flare calms down soon. This time of year is terrible for me with such frequent and drastic temperature changes on a daily basis. Take care — sending you virtual hugs and good thoughts!!
Sandy Robinson says
Thanks, Sherlock! Typically I start to feel better this time of year but the way the weather has been must have me messed up. Thanks for the hugs!
Cort says
Hang in there and good luck! I hope you can get that sleep turned around. Irritability just seems like a natural by-product of being in a flare. Don’t work too hard – I love your blog – and I hope you ‘recover’ quickly.
Sandy Robinson says
Thanks, Cort! I enjoy reading your site also. I am feeling better today. I slept good last night and I had a good day today at work.