Each year, May 12th is designated as International CFS Awareness Day and that date is quickly approaching. Last year I wrote a post with a list of things that can be done to help raise awareness. I wanted to republish that post since there were several good ideas we all can use.
There are many other things that you or a CFS support group can do to help raise awareness, thanks to the CFIDS Association. Their Grassroots Center has some ideas that I would like to share with you:
- Support groups can designate one person for the Grassroots Action Center Listserv (GAC) program to receive the latest advocacy information on CFS and share it with other group members.
- Either have your support group or several other people you know with CFS send an advocacy letter to your state’s two senators and Congress representative.
- Don’t forget to include the CFIDS Fact Sheet.
- Contact your local radio stations, newspapers, television stations, and magazines about CFS.
- Try to educate at least three people about CFS and the impact it has on daily living.
- Create a simple public service announcement (PSA) and send it to local publications and radio stations. You may be able to find a local graphic designer willing to creatively format your text at no charge. The CFIDS Association can provide you with sample PSAs.
- Distribute fact sheets or brochures on CFS to local libraries, pharmacies, grocery stores, churches, health food stores, and medical facilities.
- Give presentations on CFS to local women’s groups, church groups, civic groups and schools.
- Ask health care providers to display information about CFIDS. Don’t forget other health care professionals such as your dentist, optometrist and massage therapist.
- Send your personal story to newspapers, radio stations – anyone who will be willing to interview you on your illness.
Please also check out the ME/CFS Awareness website – lots of great information on Awareness Day & Awareness Week events!